It's National Muscular Dystrophy Awareness Month. How many ways can you make a difference in September?

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

MDA Engage Symposium: California
MDA Engage Symposium: California
MDA Engage Symposia
Presenters: John W. Day, Srikanth Muppidi, Tina Duong, Craig McDonald, Erik Henricson, Neelam Goyal, Marie Beaudin, Min Kang, Srikanth Muppidi
Supported by: Alexion, Argenx, Avidity Biosciences, Biomarin, Edgewise, Janssen, Sarepta Therapeutics, UCB
Nov 11, 2023
MDA Engage Symposium: Princeton, NJ
MDA Engage Symposium: Princeton, NJ
MDA Engage Symposia
Supported by: Amylyx, Apellis, Biogen, Genentech, MTPA, Scholar Rock
Jun 3, 2023
Gene Therapy 101
Gene Therapy 101
Virtual Learning Programs
Presenters: Natalie Goedeker, Craig Zaidman
Jun 22, 2023
ALS Learning Series
ALS Learning Series
Virtual Learning Programs
Presenters: Doreen Ho
Supported by: Cytokinetics, Mitsubishi Tanabe Pharma America
May 4, 2023
Coping with Grief and Loss
Coping with Grief and Loss
Virtual Learning Programs
Presenters: David Stevenson
Supported by: Edgewise
Apr 26, 2023
LGMD Learning Series Playlist
LGMD Learning Series Playlist
Virtual Learning Programs
Presenters: Peter Kang
Supported by: Sarepta Therapeutics
Apr 19, 2023
MDA Virtual Learning: Disclosing Your Disability at Work
MDA Virtual Learning: Disclosing Your Disability at Work
Virtual Learning Programs
Presenters: Brian Chao, Michael Lewis
Supported by: Edgewise
Nov 16, 2023
MDA Virtual Learning: Caring for the Caregiver
MDA Virtual Learning: Caring for the Caregiver
Virtual Learning Programs
Presenters: Christina Trout, Kelly McCoy Gross
Supported by: Edgewise
Nov 29, 2023
MDA Virtual Learning: Home Modifications
MDA Virtual Learning: Home Modifications
Virtual Learning Programs
Presenters: Lorraine Woodward
Nov 8, 2023
MDA Virtual Learning: Friedreich’s Ataxia
MDA Virtual Learning: Friedreich’s Ataxia
Virtual Learning Programs
Sep 19, 2023
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposium - Minneapolis, MN
MDA Engage Symposia
Supported by: Edgewise, PTC Therapeutics, Sarepta Therapeutics
Sep 23, 2023
MDA Virtual Learning Preparing for Emergencies
MDA Virtual Learning Preparing for Emergencies
Virtual Learning Programs
Aug 16, 2023
MDA Virtual Learning: Pompe Disease
MDA Virtual Learning: Pompe Disease
Virtual Learning Programs
Supported by: Amicus Therapeutics
Sep 13, 2023
MDA Virtual Learning: Accessible Travel
MDA Virtual Learning: Accessible Travel
Virtual Learning Programs
Presenters: Presenters for this webinar included Michael Lewis, the Director of Disability Policy for MDA, Mindy Henderson, Senior Director and Editor in Chief of Quest Media, and Lorraine Woodward, CEO of Becoming rentABLE.
May 1, 2023
MDA Engage: Spinal Muscular Atrophy Symposium
MDA Engage: Spinal Muscular Atrophy Symposium
MDA Engage Symposia
Dec 21, 2022
Amyotrophic Lateral Sclerosis (ALS) Symposium
Amyotrophic Lateral Sclerosis (ALS) Symposium
MDA Engage Symposia
Supported by: Apellis, Baxter, Biogen, Cytokinetics, Ionis Pharmaceuticals, Mitsubishi Tanabe Pharma America
May 17, 2022
Limb girdle muscular dystrophy (LGMD) Symposium
Limb girdle muscular dystrophy (LGMD) Symposium
MDA Engage Symposia
Jun 4, 2022
Duchenne Muscular Dystrophy (DMD) Symposium
Duchenne Muscular Dystrophy (DMD) Symposium
MDA Engage Symposia
Supported by: Biomarin, Edgewise, NS Pharma, PTC Therapeutics, Sarepta Therapeutics
Aug 23, 2022
Myasthenia Gravis (MG) Symposium
Myasthenia Gravis (MG) Symposium
MDA Engage Symposia
Supported by: Alexion, Argenx, Horizon Therapeutics, Janssen, Regeneron, UCB
Oct 18, 2022
Pediatric Care for Neuromuscular Disease
Pediatric Care for Neuromuscular Disease
MDA Engage Community Education Seminars
Feb 20, 2021
Transitions Care from Pediatric to Adult
Transitions Care from Pediatric to Adult
MDA Engage Community Education Seminars
Apr 10, 2021
Technology for Independence
Technology for Independence
MDA Engage Community Education Seminars
Supported by: Mitsubishi Tanabe Pharma America
Oct 12, 2022
Gene Replacement Therapy for SMA
Gene Replacement Therapy for SMA
MDA Engage Community Webinars
Presenters: Dr. Crystal Proud and Tanicia Johnson from Children's Hospital of The King's Daughter in Norfolk, VA
Supported by: AveXis
Mar 19, 2020
Facioscapulohumeral Muscular Dystrophy (FSHD)
Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage Community Webinars
Presenters: Johanna Hamel, neurologist at the University of Rochester
Supported by: Fulcrum Therapeutics
Oct 21, 2021
Updates in Research and Treatments in Pompe Disease
Updates in Research and Treatments in Pompe Disease
MDA Engage Community Webinars
Presenters: Diana Dimitrova, PhD, researcher from Oregon Health and Science University
Supported by: Amicus Therapeutics, AskBio
Apr 5, 2022