It's National Muscular Dystrophy Awareness Month. How many ways can you make a difference in September?

Innovations in Care

We provide programs and services that transform the lives of people affected by neuromuscular disease.

On-Demand Webinars

Mental Health
Mental Health
Facebook Live
Supported by: Amylyx, Genentech, Mitsubishi Tanabe Pharma America
Oct 21, 2021
MDA Engage: Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage: Facioscapulohumeral Muscular Dystrophy (FSHD)
MDA Engage Community Webinars
Supported by: Fulcrum Therapeutics
Oct 21, 2021
Newborn Screening
Newborn Screening
MDA Engage Community Webinars
Presenters: Dr. Marcia Felker from Indiana University Health-Riley Children’s Hospital
Supported by: Astellas, Sanofi Genzyme
Oct 6, 2021
Caregiver Seminar
Caregiver Seminar
MDA Engage Community Education Seminars
Supported by: Mitsubishi Tanabe Pharma America
Sep 25, 2021
2021 Engage Myasthenia Gravis Symposium
2021 Engage Myasthenia Gravis Symposium
MDA Engage Symposia
Supported by: Alexion, Argenx, AstraZeneca Rare Disease, Horizon Therapeutics, UCB
Sep 18, 2021
Your Future, Your Family and Neuromuscular Disease
Your Future, Your Family and Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Jordan Bontrager, Genetic Counselor from the University of Rochester Medical Center
Sep 14, 2021
Duchenne Muscular Dystrophy Symposium
Duchenne Muscular Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences, Biomarin, PTC Therapeutics, Sarepta Therapeutics, Solid Biosciences
Aug 14, 2021
Medical Equipment and Assistive Devices for Neuromuscular Disease - Part 2
Medical Equipment and Assistive Devices for Neuromuscular Disease - Part 2
MDA Engage Community Webinars
Presenters: Vicky Kern, Physical Therapist
Aug 10, 2021
2021 MDA Engage Charcot-Marie-Tooth (CMT) Family Panel
2021 MDA Engage Charcot-Marie-Tooth (CMT) Family Panel
MDA Family Panel
Aug 3, 2021
PT, Exercise and Pompe Disease
PT, Exercise and Pompe Disease
MDA Engage Community Webinars
Presenters: Scarlett Morris and Mary Crouch Young, Physical Therapists, from the University of Kansas Medical Center
Supported by: Amicus Therapeutics, AskBio, Astellas, Sanofi Genzyme
Jul 28, 2021
Mental Health and Amyotrophic Lateral Sclerosis (ALS)
Mental Health and Amyotrophic Lateral Sclerosis (ALS)
MDA Engage Community Webinars
Supported by: Amylyx, Biogen, Mitsubishi Tanabe Pharma America
Jul 27, 2021
Introduction to the Diagnostic Odyssey of Neuromuscular Disease
Introduction to the Diagnostic Odyssey of Neuromuscular Disease
MDA Engage Community Webinars
Presenters: Mackenzie Blaile, MS, LGC, and Melissa Gibbons, MS, LGC, certified genetic counselors from Children’s Hospital Colorado
Supported by: Pfizer
Jul 15, 2021
Medical Equipment and Assistive Devices for Neuromuscular Disease – Part 1
Medical Equipment and Assistive Devices for Neuromuscular Disease – Part 1
MDA Engage Community Webinars
Presenters: Vicky Kern, Physical Therapists
Supported by: Hillrom
Jul 10, 2021
Polymyositis and Dermatomyositis
Polymyositis and Dermatomyositis
MDA Engage Community Webinars
Presenters: Dr. Namita Goyal, Co-Director of the UC Irvine-MDA ALS and Neuromuscular Center
Supported by: Kezar Life Sciences
Jun 30, 2021
Mental Health and Limb-Girdle Muscular Dystrophy
Mental Health and Limb-Girdle Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Monique Costello, Clinical Social Worker from Washington University Neuromuscular Disease Center
Jun 23, 2021
Creating strong connections and relationships
Creating strong connections and relationships
MDA Engage Community Webinars
Presenters: Paige Lembeck, a Pediatric Psychologist and Assistant Clinical Professor at the Yale Child Study Center
Jun 10, 2021
2021 MDA Engage Facioscapulohumeral Muscular Dystrophy (FSHD) Family Panel
2021 MDA Engage Facioscapulohumeral Muscular Dystrophy (FSHD) Family Panel
MDA Family Panel
Supported by: Avidity Biosciences, Fulcrum Therapeutics
Jun 8, 2021
Diagnostic Odyssey of Pompe Disease
Diagnostic Odyssey of Pompe Disease
MDA Engage Community Webinars
Presenters: Dr. Jennifer Cohen, from Duke University
Supported by: Amicus Therapeutics, Sanofi Genzyme
Jun 7, 2021
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
2021 MDA Engage Limb Girdle Muscular Dystrophy (LGMD) Symposium
MDA Engage Symposia
Supported by: Sarepta Therapeutics
Jun 5, 2021
Adult Neuromuscular Seminar
Adult Neuromuscular Seminar
MDA Engage Community Education Seminars
May 22, 2021
Gene Therapy and Duchenne Muscular Dystrophy
Gene Therapy and Duchenne Muscular Dystrophy
MDA Engage Community Webinars
Presenters: Farida Abid, MD, Neurologist at Texas Children’s Hospital
May 20, 2021
Virtual Medical Visits: A 2021 Update
Virtual Medical Visits: A 2021 Update
MDA Engage Community Webinars
Presenters: Dr. Victoria Lawson and Yvonne Lanouette from Dartmouth-Hitchcock Medical Center in Lebanon, New Hampshire
Supported by: Genentech
May 13, 2021
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
2021 MDA Engage Amyotrophic Lateral Sclerosis (ALS) Symposium
MDA Engage Symposia
Supported by: Alexion, Amylyx, Apellis, Biogen, Cytokinetics
May 12, 2021
Preparing for the future - Finding the best college and career for you
Preparing for the future - Finding the best college and career for you
MDA Engage Community Webinars
Presenters: Kayla Brown, from the DO-IT Center and will feature a Q&A roundtable with members of the MDA community
Supported by: Numotion Foundation
May 5, 2021
2021 MDA Engage Myotonic Dystrophy Symposium
2021 MDA Engage Myotonic Dystrophy Symposium
MDA Engage Symposia
Supported by: Avidity Biosciences
Apr 28, 2021